Perceived Needs
The data clearly indicate a strong interest in youth/family summer camps geared towards diabetes education. Eight out of 14 youth expressed an interest in meeting other youth with type 2 diabetes and attending youth/family camps. Currently, summer camps and prevention programs specifically targeting Latino and African-American youth do not exist within many states and counties in the United States including Santa Clara County, despite these being the populations that comprise most of the newly diagnosed cases of type 2 diabetes mellitus among youth.
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The characteristics described in the present study are consistent with previous studies that have examined the demographics, physical characteristics, and family history of type 2 diabetes in North American children and adolescents. While some of the environmental factors that contribute to type 2 diabetes are both recognized and preventable, the rates of type 2 diabetes among youth, specifically in certain ethnic groups, are on the rise. Additionally, a family history of diabetes does not necessarily equate to increased knowledge of the associated diabetes risk factors that may minimize early-onset of this disease.
As the characteristics and diabetes risk factors of type 2 diabetes among youth continue to be identified, prevention programs will need to be designed and implemented. Summer camps and school-based education programs are available for children with type 2 diabetes in certain parts of the United States and Canada. These camps and school-based education and prevention programs have been established because type 2 diabetes has been recognized in Native American youth for over 15 years (Rosenbloom, Joe, Young & Winter, 1999). It has been shown that a child who attends a summer camp for two consecutive years is more likely to adopt lifestyle changes that lead to improved diabetes management (Cook, & Hurley, 1998). Diabetes education programs for this population will need to be culturally appropriate and focus on family involvement to increase the quality of life and decrease some of the preventable health risks associated with this disease.
The youth diagnosed with type 2 diabetes are reported to be a challenging population to work with due to poor blood sugar control, missed appointments with physicians and diabetes educators, and the pressure to conform to the lifestyle behaviors of their peers. As more youth are diagnosed with type 2 diabetes at increasingly younger ages, they will be living with the disease for much longer periods of time than their adult counterparts, potentially facing higher medical costs and more diabetes complications including cardiovascular disease and hypertension at younger ages. Due to the recent increase of cases of type 2 diabetes among youth, support programs and services have yet to be developed and implemented to address the needs of this unique population.
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It is also clear that family involvement and positive role models will be integral in the success of the self-care required of youth who are diagnosed with type 2 diabetes. Finally, the community programs developed for this population will need to focus on the diverse cultural needs since the majority of youth cases with type 2 diabetes are found in the Latino, Native- American, and African- American populations.